I’ve been a member of POQC/MOQC since 2017, when I was invited to join through an associate at Michigan Medicine. I’ve had the honor of being part of several volunteer efforts at Michigan Medicine, including a 6-year member of their Cancer Center Patient and Family Advisory Board. All of those experiences were invaluable and gratifying.
But my time with MOQC/POQC has been far and away the most inspirational and rewarding. This is due in large part to MOQC’s steadfast, genuine enthusiastic support of patient and caregivers’ participation and input into all facets of MOQC, including presenting at Biannual and Regional Meetings. The willingness to have POQC members suggest, initiate and “run with” projects of particular and personal interest to them is a gift for which I’m incredibly grateful. MOQC truly listens and takes POQC members input to heart.
I have participated in several MOQC initiatives and work groups including the End-of-Life/Palliative workgroup, participating in the review of database vendors, and a nationwide project to develop new Patient-Reported Outcome Measures for Oncology Care (PROMOnc).
But the initiative closest to my heart is the one I requested and MOQC wholeheartedly supported–developing resources for caregivers. With extraordinary staff support and some POQC colleagues, MOQC now has a robust Patient and Caregiver Resources page on their website. We introduced the project at the June 2022 Biannual Meeting, including a penal presentation that included caregivers and providers. We are now in the process of developing a program to ensure that all the oncology practices are aware of this resource and how it can be shared with their patients and caregivers.
There has not been any other volunteer group of which I’ve been a part that allowed, encouraged and supported projects initiated by its patient, caregiver and family members–MOQC is truly unique and I’m appreciative beyond words! The caregiver effort is not the only one of this sort–there are at least 3 other initiatives suggested by POQC members that are supported with equal enthusiasm by MOQC.